I’m not sleeping. When I get to sleep “early,” I sleep at 11:30. A normal night is 1:30 or 2 am. Then I have to get up at 7 or so, and start my day. I go through my whole day exhausted, until about 10 pm, at which time I’m practically wide awake and don’t want anything to do with sleep.
I’ve. Tried. Everything.
I’ve stopped drinking caffeine after 4 pm.
I don’t take naps during the day, hoping that will help me sleep.
I get up early to do things, and make sure I keep doing things all day.
I’m still not sleeping until around 1:30 or 2 am. I don’t really even know what to do at this point. Even Benadryl, which usually makes me so sleepy I literally cannot stay awake, doesn’t help me sleep. If anything, I actually feel more like crap the next day after taking it.
So, I’m at a loss. And I started googling to see if my exhaustion, and my sleeplessness is related to the ankylosing spondylitis, and found a study that seemed to conclude that fatigue is in fact related to AS. The study was, of course, comprised of all men, so I’m not sure what that means for me. Am I just some strange genetic anomaly? I have AS, but it’s as severe for me as it is for a man, even though I should be better off. My sister had problems with iritis, but never really followed up on anything. It’s possible she suffers from the same stuff, too, but she self-medicates so heavily that maybe it just doesn’t bug her anymore than her hangovers do. So where that leaves me, I don’t know. I feel like I’m in limbo, and it’s still another week before I see my primary care doctor and who knows how long after that before I finally see a rheumatologist. Hopefully it will be a quick referral.